One of the scariest things i have ever witnessed,one of my uncles by marriage was always a very healthy guy about 250 lbs a vegatarian,exercised,ate right,never drank or did any drugs died of creutzfeldt-jakob disease.Went from extremely healthy to dead in about 6 to 8 weeks.Absolutely one of the worst things i have ever witnessed,would not wish it on my worst enemy.
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Fifty-Fifty: Whether to Test for Huntington’s
Started by
Hasina
, Jan 31 2013 01:46 AM
18 replies to this topic
#16
CrimsonKing
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"It does not require a majority to prevail,but rather an irate,tireless minority keen to set brushfires in peoples minds" Sam Adams
Posted 01 February 2013 - 04:30 PM
"If it is not advantageous,do not move.If objectives can not be attained,do not employ the army.Unless endangered do not engage in warfare.The ruler cannot mobilize the army out of personal anger.The general can not engage in battle because of personal frustration.When it is advantageous,move;when not advantageous,stop.Anger can revert to happiness,annoyance can revert to joy,but a vanquished state cannot be revived,the dead cannot be brought back to life." Sun-Tzu
#17
Hasina
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JINKIES
Posted 01 February 2013 - 04:42 PM
I believe you, on 01 February 2013 - 03:29 PM, said:
People who know or suspect a history of genetic illnesses should inform all those in their group who need to know, spouses, children who are already adults or near it with exceptions for maturity, persons they might want to marry, and any other in long term relationships, then as a group they should decide whether to have a test taken but the final decision should always be with the person who is at risk to take a test or not. A discussion should be required still.
Edited by Hasina, 01 February 2013 - 04:43 PM.
~MEH~
#18
CrimsonKing
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"It does not require a majority to prevail,but rather an irate,tireless minority keen to set brushfires in peoples minds" Sam Adams
Posted 01 February 2013 - 05:00 PM
Hasina, on 01 February 2013 - 04:42 PM, said:
Exactly. That's one of the biggest things on my mind. If I do ever end up in a serious relationship, it wouldn't be fair to my significant other when they become less my partner and more my care taker, it's robbing them of a life and a chance at a more, for lack of a better term, fulfilling relationship.
Agreed,but if everyone got scared and ran off because of one's condition or family history the human race would become extinct rather quickly.Life is to short,live and love while you can and if one truly loves someone taking care of them will not be a concern no matter what.
"If it is not advantageous,do not move.If objectives can not be attained,do not employ the army.Unless endangered do not engage in warfare.The ruler cannot mobilize the army out of personal anger.The general can not engage in battle because of personal frustration.When it is advantageous,move;when not advantageous,stop.Anger can revert to happiness,annoyance can revert to joy,but a vanquished state cannot be revived,the dead cannot be brought back to life." Sun-Tzu
#19
Queen in the North
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We're more Ceefax people.
Posted 01 February 2013 - 07:15 PM
I don't know whether I'd take the test. On one hand, it would be very scary to begin showing symptoms and not know what was happening to you, if you didn't know you had it.
On the other, if you did know you were likely going to develop it at some undetermined point in the future, it has the potential to seriously affect your quality of life. I mean, you'd get to a certain age, and every time you did something that could possibly be construed as a symptom of Huntingdon's, just the odd stumble (which is very easy to do anyway, especially if you're clumsy), or even just dropping things. It could easily make you paranoid, and you wouldn't be living the years you have of sound health to the full.
Also, it could depend on the stage in your life you're at when the situation arises where you may want to be tested for Huntingdon's. If you have had children, the decision is more about you, as the children may or may not have it too - you cannot change that, there is no decision involving choosing whether or not to have children. It's more about whether you want to know. If you haven't had children, and intend to, there could be more of an issue in deciding whether you want to risk passing it on to your future children.
On the other, if you did know you were likely going to develop it at some undetermined point in the future, it has the potential to seriously affect your quality of life. I mean, you'd get to a certain age, and every time you did something that could possibly be construed as a symptom of Huntingdon's, just the odd stumble (which is very easy to do anyway, especially if you're clumsy), or even just dropping things. It could easily make you paranoid, and you wouldn't be living the years you have of sound health to the full.
Also, it could depend on the stage in your life you're at when the situation arises where you may want to be tested for Huntingdon's. If you have had children, the decision is more about you, as the children may or may not have it too - you cannot change that, there is no decision involving choosing whether or not to have children. It's more about whether you want to know. If you haven't had children, and intend to, there could be more of an issue in deciding whether you want to risk passing it on to your future children.
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