Jump to content




Welcome to Unexplained Mysteries! Please sign in or create an account to start posting and to access a host of extra features.


- - - - -

This'n That #10 - Mysterious Chemicals?


  • Please log in to reply
29 replies to this topic

#1    Saru

Saru

    Site Webmaster

  • 20,062 posts
  • Joined:06 Mar 2001
  • Gender:Male

  • "The most beautiful thing we can experience is the mysterious." - Albert Einstein

Posted 25 August 2003 - 11:24 AM

This'n That #10 - Mysterious Chemicals?
Columnist Editorial By Nancy

Editorial Link:
http://www.unexplained-mysteries.com/edito...isnthat10.shtml


#2    Benjo Koolzooie

Benjo Koolzooie

    Psychic Spy

  • Member
  • PipPipPipPipPipPipPipPip
  • 1,619 posts
  • Joined:10 Aug 2003
  • Location:England

  • Pink is like red but not quite...

Posted 25 August 2003 - 11:34 AM

That was very intresting and very...dare I say....different Nancy!  original.gif
Enjoyed reading it.

Cherokee Warrior you've lost your battle that's for sure, but what you left behind is still shining.

#3    Nancy

Nancy

    Psychic Spy

  • Member
  • PipPipPipPipPipPipPipPip
  • 1,106 posts
  • Joined:07 Mar 2001
  • Location:South Florida

Posted 25 August 2003 - 12:12 PM

Ben....... Goodness, the ink wasn't even dry yet from SaRuMaN posting it.
wink2.gif      Thank you very much for taking the time to read. Tis true, all true.
Nancy  kiss.gif  

dying is easy ... tis the living that's hard...

#4    Benjo Koolzooie

Benjo Koolzooie

    Psychic Spy

  • Member
  • PipPipPipPipPipPipPipPip
  • 1,619 posts
  • Joined:10 Aug 2003
  • Location:England

  • Pink is like red but not quite...

Posted 25 August 2003 - 01:57 PM

I am a fast reader, I also sit here sometimes refreshing the pages for new posts. original.gif  

Cherokee Warrior you've lost your battle that's for sure, but what you left behind is still shining.

#5    Starlyte

Starlyte

    Psychic Spy

  • Member
  • PipPipPipPipPipPipPipPip
  • 1,657 posts
  • Joined:21 May 2003
  • Gender:Female
  • Location:Oklahoma

  • Wisdom begins in wonder.
    --Socrates

Posted 25 August 2003 - 06:24 PM

Fascinating article Nancy!  I love reading your editorials.  Good luck in your efforts to make more people aware of MCS.  original.gif

If this is obvious please disregard, but could you explain this last sentence a little better?  

QUOTE
I've "died" four times now, yet for some reason? I'm still "here." Although my personal world is shrinking, I refuse to give up.


I'm confused about "died" and "here" having appostrophes.  I'd like to understand what this sentence means.

original.gif


The Earth has music for those who listen." - Shakespeare

Posted Image

#6    Nancy

Nancy

    Psychic Spy

  • Member
  • PipPipPipPipPipPipPipPip
  • 1,106 posts
  • Joined:07 Mar 2001
  • Location:South Florida

Posted 25 August 2003 - 06:40 PM

QUOTE (starlyte @ Aug 25 2003, 02:24 PM)
If this is obvious please disregard, but could you explain this last sentence a little better? 

QUOTE
I've "died" four times now, yet for some reason? I'm still "here." Although my personal world is shrinking, I refuse to give up.


I'm confused about "died" and "here" having appostrophes.  I'd like to understand what this sentence means.

original.gif

oops.... starlyte, I apologize for the confusion, in using quotation marks.

I have "straight lined" .. "CODE BLUE"...  Four times... Meaning pronounced dead. Fortunately, those fancy paddles brought me back "Here" revived, alive, this plane of existence.  Lots of IV steriods, nebulizer treatments and being incubated.

All of these incidents happened in various Emergency Rooms, in either California or Florida. All four events were a result of extreme "triggers" that created what my Pulmonary Dr's call "Drop Dead Asthma" meaning, I have little if any time to survive.

Thank you again, for your kind words starlyte, I deeply appreciate it. original.gif  

dying is easy ... tis the living that's hard...

#7    Aslan

Aslan

    Psychic Spy

  • Member
  • PipPipPipPipPipPipPipPip
  • 1,523 posts
  • Joined:05 Jun 2003
  • Location:Czech Republic

  • Scariest Member of the Six Worst Men of the Apfelschnaps

Posted 25 August 2003 - 06:49 PM

Nancy, that was fascinating, it really was. My heart goes out to you.

I'm utterly baffled as to why this isn't a recognised medical condition, or at least a condition recognised by doctors 'in the field'.



EDIT: I've just read your previous post and I'm even more baffled now. It must be ghastly. You are a far stronger person than me Nancy, because I would just have given up a long time ago. My respect to you.  

Edited by Aslan, 25 August 2003 - 06:51 PM.


#8    SpaceyKC

SpaceyKC

    Government Agent

  • Member
  • 3,349 posts
  • Joined:06 Mar 2001
  • Gender:Female
  • Location:United States

  • Thank you TO

Posted 25 August 2003 - 08:24 PM

          Nancy,  I'm glad you posted your story here,  so others here could
        know  how much you've had to endure.  You know my wish is that you
         won't give up, although my first wish is that you no longer have to
        fight with the people who are supposed to be helping you.


#9    Kismit

Kismit

    Telekinetic

  • Member
  • 7,680 posts
  • Joined:02 Nov 2001
  • Gender:Female
  • Location:New zealand

Posted 25 August 2003 - 10:32 PM

  Nancy ,
      Your great ... that's it your great , O.K. inspirational even .

I must say I can't help sharing a little empathy with you here
QUOTE
Unlike broken bones or high blood pressure, there are no proven tests available or methods to track and give undeniable proof. That makes this a Catch 22 situation. You know you are ill. Your family knows something is wrong. You look for answers, guidance, professional help. Guess what. You are out of luck.

Those of us who have this, the only way to begin to cope is to learn on our own. To read, research, reach out, and trust that someday we will be accepted for what we have, as a genuine illness.

In reality, we self-diagnose and put the pieces of the puzzle together. Then, when the completed puzzle is presented to someone who is trained in the medical profession, we are perceived as overbearing, intimidating and step on toes of those who should have the answers. The world of medicine does not want us to remind them that they do not have all the answers. These gods of healing are not gods at all. They pledge an oath to "Do No Harm" ... then they deny our existence.

I have mentioned before about my sons genetic disorder .
  He was born without even so much as a single birthmark by the time he was 6 weeks old he had over 72 and I had been to 3 different Dr's  who all gave me the same response " just keep an eye on it " , Hello....... 72 spontaeneus birth marks .
Eventually 10 years and 5 Doctors down the track we accidentally found one that could diagnose him . What a shock that was  .
  Even though Neurofibromatosis is the most common genetic disorder in the world so very few Doctors are aware of it because  there are no treatments available for it . Not for the speech problems not for the fused joints certainly not fo the fibromas . No treatments untill  the cancers kick in that is  .
Doctors don't know everything yet they are taught to be arogant , because in a life a death situation asserting themselves could be crucial . In this case it's crucial you assert your self . Keep it up Nancy and thank you so very very much ...


#10    Nancy

Nancy

    Psychic Spy

  • Member
  • PipPipPipPipPipPipPipPip
  • 1,106 posts
  • Joined:07 Mar 2001
  • Location:South Florida

Posted 25 August 2003 - 11:25 PM

QUOTE (SpaceyKC @ Aug 25 2003, 04:24 PM)
Nancy,  I'm glad you posted your story here,  so others here could
        know  how much you've had to endure.  You know my wish is that you
         won't give up, although my first wish is that you no longer have to
        fight with the people who are supposed to be helping you.

KC....... wow!

I presume you won't mind me spilling the beans here, that you and I are friends. I realize you know more about the ins and outs of the mess that I have been going through, than the other Members.

Your support and strong shoulders have pulled me through many times.

I hestiated on asking SaRuMaN to post this, simply because I didn't want my story to come across as "Poor Little 'Ole Nance" .... Yet, the word "different" really hit me hard, because I am just that....... different.

KC, thank you, once again........   thumbsup.gif  

dying is easy ... tis the living that's hard...

#11    Nancy

Nancy

    Psychic Spy

  • Member
  • PipPipPipPipPipPipPipPip
  • 1,106 posts
  • Joined:07 Mar 2001
  • Location:South Florida

Posted 25 August 2003 - 11:39 PM

QUOTE (Aslan @ Aug 25 2003, 02:49 PM)
I'm utterly baffled as to why this isn't a recognised medical condition, or at least a condition recognised by doctors 'in the field'.



EDIT: I've just read your previous post and I'm even more baffled now. It must be ghastly. You are a far stronger person than me Nancy, because I would just have given up a long time ago. My respect to you.

Aslan, it is with a great deal of humility that I reply.
Yes, I am "different" and in some eyes, a "freak." I've accepted that... no other choice.

Getting to know you here, through your posts, tells me, IF you were in my situation, you wouldn't give up, either   wub.gif

As for why MCS isn't recognized, it is really quite simple. Although those with MCS have basically the same premise, the origins of exposure, reactions, etc. vary widely from person to person. There are only three medical facilities in the US that are willing to take this monster on, full bore.

To complicate matters, in order to secure a correct diagnosis, those with MCS have to be exposed to those elements that generate the bodies reactions and observed by those physicians familar with environmental illness. In order to do so, the patient is risking possible death. Many medical institutions are unwilling to attempt this and many more patients are too leary to go through with the testing.

Bottom Line: Those with MCS are usually diagnosed as "Nutz" (techinical term) and like so many other situations, the medical community is revered as be all and end all of research and diagnosis. They dislike being proved wrong. Then, the domino theory kicks in.  Currently, various support groups for MCS are working their butts off, trying to secure an acceptable "Criteria" that meets a majority of MCS 'victims'...... sorry to be so long winded!

Your respect is graciously accepted  kiss.gif  

dying is easy ... tis the living that's hard...

#12    Nancy

Nancy

    Psychic Spy

  • Member
  • PipPipPipPipPipPipPipPip
  • 1,106 posts
  • Joined:07 Mar 2001
  • Location:South Florida

Posted 25 August 2003 - 11:48 PM

QUOTE (Kismit @ Aug 25 2003, 06:32 PM)


I must say I can't help sharing a little empathy with you here 
Doctors don't know everything yet they are taught to be arogant , because in a life a death situation asserting themselves could be crucial . In this case it's crucial you assert your self . Keep it up Nancy and thank you so very very much ...

crying.gif Kismit, I must admit I wasn't aware of your son's medical problems and my heart goes out to You and your family. He is very fortunate to have you for his Mom    thumbup.gif  clap.gif  thumbup.gif

Is is easy to see how well you do understand, based on the one paragraph below.
That only seems to come from personal experience, painful and frustrating, that I know.

Kismit? I am not 'great'....... I'm just me, but I do thank you for such sweet and caring words aimed in my direction.

Whew, the only other thing I can add is.... I must have been very naughty in my prior lives...... wink2.gif    I'm paying for it nowwwwwwwwww!!   grin2.gif

Kismit? you are more than welcome xooox

dying is easy ... tis the living that's hard...

#13    SkyWatcher

SkyWatcher

    Alien Embryo

  • Member
  • Pip
  • 99 posts
  • Joined:23 Aug 2003
  • Location:Alberta Canada Under The UFO Highway

  • Have Cam, Will Travel....

Posted 26 August 2003 - 12:23 AM

Nancy, YOU ROCK!
That was a great read, and i have to agree totally with what you have to say. It appears that you have a great head on your shoulders and maybe in due time you'll cause a few more of the docs to come around, and take this thing more seriously. Up here in Canada the general action for something like that would be anti depressants, or group therapy with people you don't know, or living on welfare with $400.00 per month. I went the anti depressant route a few years ago on doctor advice, and only in the last 3 months i have forced myslef off of it, as it did far more harm than good. If there were more like you out there, people that suffer from this would be light years ahead in the health and well being department...and thusly not be so different from all the "normal" people.

EXCELLENT original.gif  

Posted Image
Your Ignorance Does Not Make Me Abnormal

#14    Kismit

Kismit

    Telekinetic

  • Member
  • 7,680 posts
  • Joined:02 Nov 2001
  • Gender:Female
  • Location:New zealand

Posted 26 August 2003 - 12:26 AM

Nancy ,

  I for one hope your naughty for many lifetimes to come yet  thumbsup.gif  


#15    Nancy

Nancy

    Psychic Spy

  • Member
  • PipPipPipPipPipPipPipPip
  • 1,106 posts
  • Joined:07 Mar 2001
  • Location:South Florida

Posted 26 August 2003 - 01:19 AM

Kismit? Thank you!   grin2.gif  I'm still a kickin!  LOL!!!!  wink2.gif  wink2.gif  

dying is easy ... tis the living that's hard...




0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users